October 1 2017

Rise Above

I have dubbed this month an awful month. There are two concessions: a possible author meet-and-greet and a few days home with family. Otherwise, I am bracing myself for a long and exhausting whirlwind of a month. Week one and two consist of a typical Monday-Wednesday workday, a 7:30am-4:30pm/5-9pm Thursday, and a nine-hour Friday/Saturday. All of this is done with a two-hour-a-day commute. Week three consists of four 10-hour workdays with treatment scheduled Friday, and a 7-hour drive home. Hopefully now that I am on the increased dose, I won’t flat line during week seven (my flex week) and ruin everything; especially given that job performance (I was recently promoted) and a certificate licensing me to be a mediator is on the line.
Jon always asks me why I spread myself so thin, which often leaves me questioning myself: Why do I have an incessant need to be everything to everybody? The only thing I can think of as the answer is maybe if I do enough, say enough, be enough, nobody will see me. The real me.
So, I’ll keep digging and piling more stuff up, piling and piling until I am nothing more than a hand with a shovel. When you look at me, you won’t see the autoimmune. You won’t see the girl with dark circles under her eyes from lack of sleep, the girl who cries in the bathroom after puking, the girl crouched in the corner of the break-room staving off the pain with silent prayers. You won’t see the girl choking down pills or getting bloodwork done every other week.
No. When you look at me, all you’ll see is the piles.
I would like to think I prefer it that way. Keeping everyone at arm’s length has always been my coping mechanism. I believe it easy to romanticize what you don’t understand. As a kid I never felt like anyone believed in me, and in some small measure I know that I will always feel that way. The bad things people say are often the easiest things to postulate in any given sense. That said, I know that I will swim through hellfire to prove everyone wrong about me and with any luck, I’ll prove myself wrong, too. There is nobody in this world that deems me a failure more than me. Hell, my body practically demands it and my reflection offers little more than mockery to the contrary.
I won’t let it win though. The girl, the other me…the disease. I refuse to let them win. I refuse to let them whittle me down to medical charts and unfounded critic. Some days I think Jon and the boys are my hypothetical smelling salt, but that is an unfair burden to place on them. I have seen with my own eyes what that kind of guilt and responsibility can do to a person. It is too much, a Herculean task of epic proportions.
I don’t know how or when, but someday…someday I will rise above.


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Posted October 1, 2017 by in category "Crohn's Disease

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